A few years ago, if anyone would have asked me what Epilepsy was, I would have said it has something to do with having seizures. Never knowing that one day it would have a significant effect on two years of our lives. The last two years, we have been trying to figure out a routine or for a lack of better words ” a new normal” for us. But it seemed like every time we would establish a new normal, a seizure would happen, and we would have to rediscover our new normal all over again.
For those that are new to the blog, my youngest Gracie, suffered her first seizure several years ago at school. I was at work ( teaching at another school) when I got the call that Gracie has a seizure. I left school and met Gracie and my husband, and we were off to the hospital. You can read How A Seizure Rocked Our World.
I had no idea that this event would change everything in our lives. At first, we thought life as we knew it had ended because it was a big adjustment and something to get used to having. But looking back it was a blessing in disguise. Gracie has learned to read the signals that her body is giving her and not only has she changed her eating habits but her sleeping habits as well. (Being too tired or hot, we have found can bring her seizures.) And having Epilepsy has only made her more determined to achieve her dreams.
Before her diagnosis of Epilepsy- we really had no clue what it was about? But since then we have discovered a lot about this disorder. According to Epilepsy.com
- It’s the 4th most common neurological disorder.
- People of all ages have it
- It is not a disease but a chronic disorder.
- 65 million people around the world have it. That includes the 3 million in the United States.
- 1 in 26 people in the United States will develop Epilepsy at some point in their lifetime.
Most of the time how Epilepsy is perceived or how people with this disorder are treated is often a bigger problem than the seizures themselves. So this is why I would love for you to join me on March 26 and rock the color purple in honor of #EpilepsyAwareness Day. Post your pictures on Social Media with the #epilepsyawareness. Will you join me in educating others and supporting those who have this disorder?
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